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Core Value

“Educate and empower patients to take a larger role in their care.”

Patients who are informed about their disease are empowered to take a more active role in their own care. Empowered patients tend to have better survival rates.

Expert Patient Training

Specially designed classes for patients and caregivers to gain knowledge about GIST.

Survival Statistics

Best practices for survival as recommended by the LRG team.

LRG Digital Library

Here you’ll find downloadable versions of information about the LRG and about GIST.

LRG Science

The LRG Science Bulletin covers topics concerning Real World Evidence (RWE) and Real World Data (RWD) and current GIST science.


Stay up-to-date on the latest developments in area such as research, nutrition, mutational testing, and more with the LRG Webcast Library.


The LRG Video library includes hundreds of videos on subjects from GIST 101 to Surviving with GIST.

GIST Day of Learning - GDOLS

A GIST Day of Learning (GDOL) is a free one day event to help patients and caregivers learn more about this rare cancer, find support, and enhance their knowledge base to help them navigate their cancer journey.

Life Fest

Life Fest is a unique event where hundreds of patients and caregivers come together for a weekend to interact with each other and the medical and scientific communities that serve them.


The LRG’s complete compilation of articles from the beginning.

Important Links

More resources beyond the LRG website.